Last week I discovered that there’s a name for a problem I’ve had since I was 11. I’ve learned that other people have same problem, and quite a few have it way worse than I do. I found out that my "quirk" – one that close friends have lovingly tolerated, others have derided – isn’t just my own, solitary, rather embarrassing character flaw, but something very real.
I have Misophonia – literally, "hatred of sound," but that’s kind of misleading. I couldn’t live without my Beatles bootleg collection or my vintage Martin guitar, so I must love sound too. Here is misophonia in a nutshell:
certain normal sounds that people make, invariably quite soft sounds, register
in my brain like a hundred nails on a chalkboard. Open-mouth gum-chewing, for
example, or aimless whistling can torment me, as well as some visual stimuli.
My thinking short-circuits if someone habitually shakes a foot anywhere in my
field of vision. But because I’m otherwise a rational, relatively normal
person, I have a cache of coping skills: I never leave the house without an
iPod (a portable refuge), I have a list of handy reasons I may need to step
away quickly, and sometimes I just have to suck it up, which is incredibly
difficult. On a plane, I’ll barely
notice the engine roar, but I’ll be completely unhinged by the guy ten rows
back who doesn’t know that Kleenex can bring his chronic sniffing to a halt. In those moments, strangers would have no way
of knowing that I’m desperately eyeing the escape slide, but my partner now
reads my body language like Sherlock Holmes and scans the crowd curiously to
find the ordinary thing that has hijacked my brain.
I
know, it sounds ridiculous. Or you might be thinking, "But everybody hates it
when people pop their gum. It’s just
gross." Yes, it’s gross (and bad
manners), but is it profoundly upsetting to everybody? Even before I had a name for it, I’d try to
explain it to friends. If they didn’t
casually dismiss it, they’d breezily offer, "I’m like that too! It’s so annoying when people don’t blow their
noses." Again, let me explain. If there
isn’t a good chance that you’ll either start crying or suddenly need to "use
the restroom" because someone won’t stop smacking lunch, you don’t have
misophonia. Then there’s the worst
response of all: I should just get over it, as if my maddening neurosis were a
choice. Fortunately, to those I’m closest to, it exists as Abby’s amusing, at
times exasperating, little eccentricity. They accept me, thank heavens. I don’t talk about it with anyone else; I
just deal as best I can. After all, it’s not cancer.
However,
now that I know I’m not alone in this, I’m coming out, albeit with great
trepidation that in so doing, I’ll lose all credibility as a serious person. I
might seem...crazy. Or worse, silly. I’m coming out because as I learn about
other people’s struggle with misophonia, I see nothing silly about it. In fact,
the condition itself is rarely the biggest problem; lack of understanding by
loved ones is. To other people, this sensitivity makes no sense. They downplay it, reject its existence, or
resent being inconvenienced or challenged by it.
As
a lesbian, this all seems oddly familiar. I’m not suggesting that having a
mental health issue is equivalent to being LGBT, but we humans do have a habit
of condemning or dismissing things we don’t understand. The result is that too many of us are
painfully isolated because of it. A reporter friend recently told me that the
more he meets people in his work, the more he understands that what is
insignificant to one person means everything to another. We’re all just one hormone surge, one neuron
ping away from experiencing the world totally differently from the person next
to us. It reminds him to summon
compassion before judgment, to see commonality in our very difference.
For
me, I’m taking my new diagnosis as a humble reminder of what it’s like to feel
so different. It’s been a long time since I had coming-out jitters. It’s probably good for me.
Pullquote: As a lesbian, this all seems oddly familiar. I’m not suggesting that having a mental health issue is equivalent to being LGBT, but we humans do have a habit of condemning or dismissing things we don’t understand.